Down syndrome biobank offers at-home service

Little girl with Down syndrome next to DownSyndrome Achieves logo

The DownSyndrome Achieves (DSA) Biobank is now offering at-home services to families willing to donate biological samples for use in medical research projects. “We’ve partnered with a third-party phlebotomy company to collect blood samples in participants’ homes,” said Lito Ramirez, CEO of DownSyndrome Achieves and the parent of a teen with Down syndrome. “This will …

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Star Awards postponed

Out of an abundance of caution, the Community Star Awards event that FCBDD typically holds in the fall has been postponed this year due to the continued spread of the COVID-19 virus. A new date has not been determined; however, consideration will be given to scheduling the event during DD Awareness month in the spring. …

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Down syndrome organization focuses on adult literacy

Reading tutor Carla Harper sits across from Ethan Boerner, who is sounding out words.
Ethan meets regularly with tutor Carla Harper, left. "He's doing great," she said.

When it came to reading, Ethan Boerner didn’t make a lot of progress in school. “It just seemed so hard,” said Boerner, who has Down syndrome. “I wasn’t interested.” He never really got the chance to discover whether he might have been more successful as an older student. His educational programs moved along, and Boerner …

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